If you want to find out about how “Autism and sensory-friendly events are an increasingly common feature of community life. One predictable aspect of these events is the presence of sensory havens, which serve as a respite or self-regulation zone for neurodiverse children, family, friends, and, occasionally, their service animals. When research evidence contributes to the design of these spaces, they can positively impact the length of time people attend events and the quality of their experiences. The authors detail autism architecture guidelines and sensory regulation research, and provide practical strategies for designing and operating havens …” and what to do about it in the places and spaces you inhabit, it will cost you a lot to RENT IT for 24 hours.
Indeed, VERY frustrating! My elderly father with Parkinson's disease helps lead a regional group for others living with the disease and their family members, caretakers, etc. He received a large donation from an affluent family friend to construct a building to serve as a local meeting, educational, and recreation space for the Parkinson's community. He reaches out to me from time to time for advice on things like accessibility and inclusion, and this is one of the areas I was trying to assist him with... making the physical space inclusive for all kinds of disabilities (which are generally higher in the Parkinson's community since it affects more people as they get older and so many other disabilities come along for the ride). But I'm a far cry from being an architect or interior designer, so I was limited in the advice I could give, and when I tried to find what scant formal literature exists, paywalls like this were ubiquitous!
This is one of those "no good answer" dilemmas, I think. This particular example seems egregious; surely they could make it more affordable. I would like to see us (on a societal level) grapple with the conundrum of how to both compensate authors (and all other producers of "public service" type art and media) equitably for their work, while still making it accessible to the people who need it the most - many of whom cannot afford to pay for it. The big answer, of course, is to dismantle capitalism, but that isn't realistically going to happen anytime soon. We need more community-based solutions that aren't beholden to capitalist interests.
Indeed, VERY frustrating! My elderly father with Parkinson's disease helps lead a regional group for others living with the disease and their family members, caretakers, etc. He received a large donation from an affluent family friend to construct a building to serve as a local meeting, educational, and recreation space for the Parkinson's community. He reaches out to me from time to time for advice on things like accessibility and inclusion, and this is one of the areas I was trying to assist him with... making the physical space inclusive for all kinds of disabilities (which are generally higher in the Parkinson's community since it affects more people as they get older and so many other disabilities come along for the ride). But I'm a far cry from being an architect or interior designer, so I was limited in the advice I could give, and when I tried to find what scant formal literature exists, paywalls like this were ubiquitous!
This is one of those "no good answer" dilemmas, I think. This particular example seems egregious; surely they could make it more affordable. I would like to see us (on a societal level) grapple with the conundrum of how to both compensate authors (and all other producers of "public service" type art and media) equitably for their work, while still making it accessible to the people who need it the most - many of whom cannot afford to pay for it. The big answer, of course, is to dismantle capitalism, but that isn't realistically going to happen anytime soon. We need more community-based solutions that aren't beholden to capitalist interests.
Hey Jim, that article looks interesting, and I feel your pain. I found a free copy of the article: https://journals.sagepub.com/doi/pdf/10.1177/00400599231171715?casa_token=egMJ1tmW92oAAAAA:XcuEgZ_KahzD0Pco48JH9n8-CSyJQuxXd2bfaggVApbztpZ3DAWDlzbKPUX5kqnkXRGvar9gfuVq I also wrote a post about how to find free copies of research journal articles, which will come out next Monday. You can preview it here: https://open.substack.com/pub/mosaicofmindss/p/how-to-beat-the-paywall?r=1ffi0&utm_campaign=post&utm_medium=web Enjoy!
thank you :)